Last year, I started a Facing My Fears series, writing about the fears I have for my son, about school, about being different, about not learning, about missing out. I knew there were more fears and one in particular - about friends. But I couldn't bring myself to write it. Which means it's a hard one. *deep breath*
Jack laid on the floor of the waiting area in the hair salon, playing with the fire truck. It had a start-up sound AND a siren. So, even though the doors didn't open, he liked it. Laying on the floor like that, he looks younger than his seven years.
A little girl wearing a pink tulle ballerina dress and blonde pigtails sashays into the room. She's about three. Maybe four. She looks at me and smiles. "What's your name?," she asks. She has such clear speech and in-your-face curiosity that I'm stunned. I always forget that kids so young can talk and interact so ... directly. So straight-forwardly.
Jack gets up off the floor. He steals a secret sneak over his shoulder at the hem of the girl's dress. He shifts his attention back to the fire engine. The little girl gets a purple princess castle out of a bin and puts in on the floor.
Jack, turning the siren on: There's a fire at the castle!
I feel a spark of pride. I like that he can, right now at least, feel comfortable enough to play the way he wants to. Usually, other kids are sensory overloads. They move too fast, make too much noise. They wear dresses or they talk too fast or too much, preventing Jack from doing what he wants to do.
So right now, I'm just happy he can be in the same space as another child.
Of course, I don't leave it there. In my mind pops up the little, "Well, there was almost interaction." Intrusive thought, disturbing the peace.
And the thoughts don't stop.
Does he need a peer-group friend? Is peer-group even relevant to Jack's social needs? What about social needs that he wants, not that others think he should have? What if peer-group isn't what he wants? Boys his age with the superheroes, soccer, loud voices, fast movements, in his face?
What's a peer group for anyway? Peer groups so often start the "normalization" process, the part where kids embarrass or bully each other into conforming to perceived standards. Peer groups that distill individual kids into gender-specific roles - with "girls can't be astronauts" taunts or "boys can't use pink bowling balls" rules. Or into so-called "social norms" like "what is he doing" sneers about flapping or run-dancing. Where the peer group weeds out those who are different and threatens those who don't conform. Yeah, all that good stuff.
And what exactly is his peer group? Is same-age even the right fulcrum to balance relationships on? I think about relationships and how we interact. How we get satisfaction from shared interests, shared journeys, not shared ages.
I turn my mind back to Jack. He is interested in people. On his own terms and time, he interacts with them. He likes people.
But he can't interact with people or with kids on demand. He can't respond to direct questions. He has to stare to process a person's face and actions. He can't hear when he's processing a face, actions, or movement. He can't hear words when more than one person is talking. He ignores all sounds, including speech, when it's too noisy. He can't see in a crowd.
If Jack had to pick a best friend, it would be Ryan, a grown-up player who comes over several times a week. A friend who plays, who Jack talks to about things he likes - keys, cars, bowling competitions. Who swings him, throws with him. Whom he asks questions to: about his girlfriend, car, mom, meetings.
Jack doesn't interact with Ryan the way that other kids do with their friends. He doesn't. For all the same autistic reasons he doesn't act the same as other kids. He gets overwhelmed by emotions, fatigued from processing, too tired out for new ideas or more conversation.
How he acts or interacts, whether it's different from other kids, or his own unique style, doesn't matter. That's all my interpretations, or someone else's. The only question that matters is: Is he getting his social needs met? Social needs like independence, autonomy, decision-making, equality, satisfaction from a relationship.
Playing with Ryan does give him some of that. It's some independence away from me, his parent. It's autonomy about what he's going to play. He's getting practice in a relationship. He feels equality, for the most part, with Ryan. He's was surprised when he learned that Ryan doesn't live with his mom. But comforted that he lives with his girlfriend. That's like a mom, right?
Maybe it is enough.
I don't want to force a peer friendship because I think it's what he should have. I always carry the thought that Jack's age will catch up to his sensory needs and interests. That when he gets older, his peers will have finally slowed down, quieted down, and become interested in the things Jack likes.
I have to go back to that thought. Because that fear comes up inside me. That fear when I read some of the adult sons' interviews on The Thinking Person's Guide To Autism. When they say, "I wish I had a girlfriend. I really wish I had a girlfriend."
I wish they did, too. Or a boyfriend. Or just a friend. I have the same prayer that so many of us mamas do. Please let my son have at least one quality relationship. One in which he is happy. One for when I am not enough. One for when I am not here.
That fear hurts. And I have to sit with it for a moment. Hello, fear, my old friend. I know you. You're the fear I had when my daddy left me. You're the same fear that I wouldn't find a life partner. You're the fear that I will be alone. You're the fear that my son will feel alone.
I force my thought to others. The rest of my family. The magic cousins. My friends. Their kids.
Sometimes we cannot fix all the things that might happen to our children. Sometimes they won't happen. Sometimes they will and it will still be okay. Or they will have strength. We can't live the future. We can't live their lives.
So, go back to right now, mama. Jack is happy. He likes people. He likes life.
He is happy. And that is enough.
****
"He is happy. And that is enough." Indeed!
ReplyDeleteBrenda, this is something I'm not so good at...staying in the moment. It's something to cultivate. I can't remember where I read this - on an adult autistics blog they wrote about preferring to be around adults when they were children. children are too unpredictable.
ReplyDeleteI love the "He is Happy. And that is enough." Sometimes forcing them into what we think they should have can do more harm them good. I like the fact you let him do it on his own terms. I do that with my son. He has his moments where he can make connections and interact. And other times he just wants to be alone. I get tired of the pressure from other people about what my son should be doing or should have.
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ReplyDeleteWhen I was being assessed I said I had friends, I was then asked whether I had visited their homes, it had not occurred to me. When I was.asked if I knew where any of them lived I realised that my definition of friendship is different. I obviously require Les from a friendship than other people.
ReplyDeleteI have been married for thirty years, I don't know how that works, but Neelam is very tolerant of my social ineptitude, and seems to find me amusing.
Not sure if this is relevant to your post (I think it might be):
ReplyDeleteSince I was very small, I've had friends and acquaintances outside my age group, both younger and older. It never occurred to me that this was odd or unusual, until, mmm, probably my late teens, or college, when it (constantly) pointed out to me by friends, other students, family, etc. Like a lot of things that I was perfectly comfortable with on my own, I became super-aware of yet another difference between me and almost everyone else I met. I matured unevenly compare to other people my age (the usual asperger's stuff-well developed vocab, but emotionally slow, despite appearing very mature and composed).
To me, I could not see why I couldn't be friends with someone younger than me, or much older, as long as we were both getting something out of it. This tends to be true for me with things like economic class, gender, race as well. I'm not saying I could never be prejudiced, but it's usually about the choices people make, or how loud they are, whether they smoke, etc :-)
Great job Brenda!
You express some of the same thoughts and fears I have as well. We live in an isolated area without peers for my son. His interactions are solely through his school (NT private kindergarten). As parents, we so often have to guess, not only what is the "right" choice (which every parent has to face) but what our children want because often they cannot communicate it to us. My son prefers the company of adults as well. And truly, age, I think is just a barometer to help identify interests that could be shared (but I do love reading Ben's ^ comments as they are very insightful!)
ReplyDeleteI remember early on how a teacher told me they were concerned because my daughter had adult friends and no child friends. My comment fun was, "So? She is going to be an adult for most of her life and a child for a brief span. She'll still be able to be friends with the adults when she's an adult."
DeleteSchool is a contrived environment. Where else in life are we expected to bond with people just because we are the same age? Your son just needs safe people to be himself with. Hang in there. It gets better.
My daughter has Asperger's. She is 16. I worried about her not having friends when she was younger and she didn't have traditional friends. I think all any of us want is someone to connect with, someone who GETS us on the most basic level. Those people come to us in life in so many ways and can't be contained in a simple "same age" category. Don't worry! Those connections WILL happen. My daughter has friends in her autism social group though she never chats on the phone, goes to their house or hangs out with them, they still are good friends and they are together in ways that others aren't. She also has friends online who share her passions and praise her and then there are all those family friends that have loved her from the beginning "just because". Those familiar people are comfortable companions. Your son may never have what we might consider a traditional friendship of childhood but he WILL have the connections he needs in life. Hang in there, mom. You are doing a great job!
ReplyDeleteFirst of all, I love that you are willing to verbalize your fears and sit with them and examine them. That takes buckets of courage.
ReplyDeleteSecond, I tend to believe that our kids interact with others the way that works for them. My daughter who has SPD also gets overloaded by the noise and activity of other kids from time to time and then, other times, she needs to have massive doses of physical activity to wear her nervous system out so she can function - not every kid (or parent) understands that, but somehow, intrinsically, she does and I've learned that she can self-regulate for the most part. And if she can't, there are generally some cues that allow me to 'get' what it is she needs at any given time. Sounds like Jack has what he needs for now and the fact that you are so self-aware and willing to examine your own emotions about it all can only help him in the long run.
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ReplyDeleteEnjoy!