Friday, September 21, 2012

Autism: How to Intervene Without Escalating Tension


Four Steps to Help an Autistic Child Who is Overwhelmed Without Making Things Worse

Jack was chasing our cats.  I was in the kitchen cooking and he wanted to interact with somebody, something.  He was also feeling tired and hungry, which means his ability to regulate his emotions begins to slip.  Most times the chasing ends up peacefully when the cats find a bed to hide under or when Jack finds something more interesting.  But this time,  I saw a crouching cat under the table with my child swatting at him, trying to get him to run.  And the thoughts in my head turned into must not's, can not's, and will not's.  Very quickly, partial phrases like "he must stop,"  "cat is afraid," "he shouldn't be," and "he has to learn."  I moved in to put my foot down, literally and figuratively.  And that's where it went wrong.  Jack got very angry, justifiably so, physical, and the whole situation deteriorated into a meltdown.   

Second story.  Jack was bowling with spoons.  One of the spoons had broken its plastic handle, but it didn't have sharp pieces, so I told him he could have it.  I didn't stay to watch his bowling, but went back into the kitchen to cook dinner.  When I returned a few minutes later to give Jack a two-minute warning before dinner, I watched him bowl with the broken spoon.  That thing was bouncing like rubber.  It flung back towards Jack, dangerously close to him.  I knew I had to stop him and take back the spoon.  I also knew he was tired and hungry, and that he was really happy with his broken spoon.  This was going to be difficult.  In my mind, I quickly thought "sorry," "must keep him safe," "poor thing will be sad."  He did cry, was justifiably upset, but the situation didn't escalate to angry, physical, meltdown. 

What made the difference between the two situations?  When I think tense thoughts, Jack catches those emotions and goes under.  When I think compassionate thoughts, it de-escalates an upsetting moment.  The thoughts I hold in my head when I interact with my child directly affect how he responds.  Is that not amazing?  Autistic children are that highly sensitive to emotions.  They "catch" even the smallest tension or negative emotions.  Autistic children absorb those emotions, which tips them off balance.  The emotions cause an out-of-control feeling, a feeling that they are being swept away by a tidal force.  And they are.  They are no longer in control of their emotions or actions.

Emotions are like waves.  I grew up on Florida beaches and I've been knocked over by waves many times.  Some are not so serious, but some are terrifying.  When you're swept under a wave, you can't breathe, you can't see, you can't hear, and you don't know which way is up.  You are no longer in control.  The same is true for autistic children caught in the waves of negative emotions.

When you interact or intervene with an autistic child, how can we help them without escalating the situation?

1. Before doing anything, take note of your thoughts

So much of our lives, we go through our day being able to think about what we want to think about.  It's a massive perspective shift to recognize how much our own thoughts transmit to autistic children.  I can let thoughts flit across my brain all through the day, but I have to remind myself to be aware of them.  Especially when I start to think tense or anxious thoughts.  Ones that don't even feel particularly tense or anxious to me will form a wave strong enough to knock over my child.

Throughout the day, then, take a minute to notice your thoughts.  When you interact with your child, notice the intentions you hold in your head at that moment.  Notice if any of them feel worried, judging, irritated, or tight. 

2. Take long breaths

Before you take any action, breathe five long breaths.  Breathe in through your nose, out through your mouth, then say your name in your head.  Breathe in, breathe out, say your name.  Feel your center.  Feel your feet on the ground.  Do this at least five times.   
 
3. Give your full and compassionate attention to your child

Anxiety presents itself in different ways.  Autistic children who are anxious may look neutral, angry, or very giddy.  It may look like they're happy or willfully misbehaving.  Take a minute to become mindfully present.  Sit with your child.  Focus your full attention on them.  If your mind wanders to worry, stresses, other people, the past, or the future, bring your mind back to your child.  Take long breaths.  Bring compassion to the forefront of your thoughts.  Look at your child with love, no matter how they're acting at that moment.

4.  Reassure your child

The primary emotion autistic children feel when they are swept under the waves of emotion is fear, not aggression or intent to do harm.  They may threaten harm to themselves or to others, flailing, hitting or kicking, but at that moment, they are very, very afraid.  They are swept under.  They can't see, hear, breathe, or tell which way is up.   All the usual parenting tools, like discipline or rule-setting, cannot be done in this moment.  In this moment, autistic children aren't even able to breathe.  They need help.

You can't rescue a flailing swimmer.  He will drag you under the waves and you'll both be in danger.  You have to calm a flailing swimmer.  

Reassurance doesn't mean stopping their emotions.  Anger and upset are valid emotions.  Children are allowed to feel it, no matter what kind of feelings it brings up in us.  Trying to stop upsets feels to our children like we are denying or dismissing them.  We are there to calm, not change their minds.

Reassurance doesn't involve physically restraining your child.  Negative physical touch increases anxiety and fear.  Like that flailing swimmer, our children will defend themselves, they'll fight back against negative touch or any touch.  They aren't intentionally hurting.  They aren't intentional at all in this moment.  They are merely trying to breathe, trying to survive.  Once our children are big, physical restraint becomes impossible, so it's neither a helpful nor long-lived strategy.

Reassuring your child doesn't mean time-out or isolation.  Our children are swept away and can't rescue themselves.  They need our calm, emotional attunement with them to bring themselves back to calm.  Our balance helps them balance.

Reassuring your child is much more complex than the usual parenting methods.  It's much harder.  It  takes lots of practice. Your child might be calmed by different things.  You may have to experiment with quiet, music, water, pillows to squeeze or punch, darkness, silliness, distraction, or repeating a calm phrase like "I know, I know."  You have to be willing to try many different things, many different ways, not giving up on yourself or your child, all the time knowing your child is reassured by your mere calm presence.  When I don't succeed at reassuring my child, I go back to steps 1 through 3 to regain my own balance.  And I remind myself that the single most important factor is the thoughts that I'm holding in my head that are affecting how my child responds.  Make compassion your focus.

Conclusion

The thoughts we hold in our heads directly affect how autistic children respond.  They catch our emotions and become overwhelmed.  We can prevent and soothe out-of-control reactions by changing our thoughts in our heads from worry to compassion, by breathing deeply, by bringing our full and compassionate attention to our children in that moment, and by acting with calm reassurance.

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26 comments:

  1. Thank you so much for this! This is what I have the hardest time with.

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  2. that is so true! we had an incident last night, my son went in the water with his new sneakers on, i took a breathe and let it go

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  3. Before our Jack had his diagnosis we had problems in school with his teacher, every year. Jack would pick up on the teacher's emotion and become afraid.
    During sit down meetings with the teachers we learned teachers didn't have time to give full, compassionate attention to Jack because there are 29 other students that need to "Be kept under control" err... I mean ...need teacher's attention.
    So then Jack was subject to "consequences for his actions" which is time-out and isolation. Sitting in ordered silence in the principal's office.
    Early on we wondered why Jack hated school and every morning was such a struggle.
    With the diagnosis we expected improvement in our relationship with the school, his teacher, etc. Didn't happen.
    Promises were made but not kept.

    The three steps outlined in this post are hard. Hard to do. Hard work. And also hard to get. To understand. They take time and effort to work through intellectually. Then even more time and experience to apply. Not quick and easy.
    But necessary. And worth every minute. Worth the energy spent.

    We initiated home schooling Jack six months ago. We had to put a stop to his living in fear that his teachers embraced. That Jack picked up on. That affected Jack's behavior.

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    1. It is such a difficult thing to do - taking a child out of school - so off the path. It takes lots of courage. And it will absolutely be the best thing for your Jack. ((So happy for you and for him.))

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    2. are you blogging about your homeschool journey? i'd love to read more about how you made this change and how things are going.

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    3. oh, found your blog! thanks for sharing!

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    4. We homeschool as well...It is alot of work, but has been very beneficial for my son

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  4. Thank you, Brenda. We're going through difficult transitions right now and this is exactly what I needed to hear.

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  5. Could you all please try to understand that autistic children grow up to be autistic teens and adults and some of the people out there that expect so much not from an child but an autistic teen or adult that it too makes them overwelmed but the world doesn't get that especially if an autistic teen or adult is doing their own thing in school or working the rest of the world doesn't get this and think were acting immature. I feel like everyone seems to just focus on autistic children instead of EVERY autistic (including teens and adults). I think some of this method could also be used somewhat for autistic teens and adults if need be but some people don't have the time to do this especially NT's like yourselfs. Need i mind you every autistic is different so what will work for some might not work for others, it's a whole trial and error thing.

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    1. Thank you, Brittany. And, of course, you are right - as my friend Radical Neurodivergent reminded me - autistic adults get overwhelmed, too, - and still get yelled at, too. That's very true.

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  6. Thanks for this! Tried to describe this EXACT thing to many teachers and people that interact with my son. You put it together perfectly! I am printing to share. :)

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  7. Thank you Brenda for the post! I hope it reaches a lot of people. As an AS mum to an ADS child I "naturally" worked this out myself. My son because of it has great self-esteem, confidence and talent! I put this down to things you have mentioned and more. It's all about decreasing the anxiety so they can function.

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  8. I think part of the issue is that many parents of autistic children have undiagnosed/untreated mental illness such as bipolar disorder, clinical depression, or schizophrenia. If they don't have their mental health issues under control that makes it all the more difficult to parent their children effectively. Would also like to add that today I thought of your post a while back where you mentioned being excluded from a private FB group. The very same thing has recently happened to me on another social networking site. From what I read of the posts on that site, many parents simply want to wallow in self-pity, and when I tried to point out anything that might actually be positive about autism they took it as a personal attack. These are the parents that are waiting for a "cure." It's very sad the mindset that some people have.

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    1. I'm not sure if many parents of autistic people have mental illness, I know I do but I'm autistic and not a parent, in general I don't see many people aware and in control of what they feel, maybe people that are diagnosed with mental illness actually try to be more aware of feelings and thoughts than others, this is something most people just don't care about.

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    2. No, I agree. Those diagnosed and in some sort of treatment are probably more aware of their thoughts and feelings. From what I've seen though there are many parents not diagnosed and/or not receiving any sort of treatment, and that are completely unstable. I am NOT trying to malign people with the mental illnesses I mentioned. I'm just pointing something out about parents I've encountered in various online and in-person support groups that are describing symptoms of the disorders I mentioned but are not getting any help. Also, research does point to family connections between those disorders and autism, so i think I have a reasonable hypothesis. But yes, people in general nowadays don't seem to put much thought into how their thoughts and feelings might affect someone else. I've certainly been the victim of that time and again by so-called "normal" people.

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  9. Great advice for all children!

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  10. I really love your posts. I'm approaching 30 and self-diagnosed on the less affected side of the spectrum and really wish I knew someone with your insight when I was younger. I just read your last several posts and had more than a few head-smacking moments "Wow, THAT'S why I was like that!" Your gifts of seeing the true causes of our symptoms is astonishing and invaluable to the human community. <3 <3 <3

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  11. Awesome Post. I would love to extend an invitation to our facebook blogging group Blogging Together for Autism. It is a great place with writers and readers.

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    1. Great post Brenda.

      Just to note, this sounds like a great facebook blogging group. Much nicer than the bunch of adolescent moms who were bashing you on the other one over the SS incident. I hope the day comes when some of these parents can grow up and not act like 12 year olds when someone has a different opinion from them. I was most taken aback by the holier than thou Jessica Wilson who immediately removed your blog from her blog roll because others had a different view than her. Mature.

      Anyway, keep up the great writing. It helps a lot of people.

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    2. You said it, anonymous. Some of these moms need to grow up!

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  12. Thanks, Anonymous. What I was talking about was a really abstract idea that was difficult to convey. It's just that Jess and moms like her are stuck in what Karla (Karla's ASD Page) calls stuck in the fear/anger/fix stage. And all we can do is support them until they are ready to leave that stage.

    Thanks for the kind words.

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    1. A great way to put it. Regarding DOAM, she seems to convey such misery that she admits she actually frightens and concerns her older daughter at times. Her post today, and some in the past, shows her just sitting in places, like a restaurant, and then suddenly making the entire family upset because she gets so lost in her own self pity regarding her life and her daughter's autism. She certainly seems to rule that family with her emotions and I find that unfortunate. I know she is popular with some readers but I find her to be the most self absorbed mom I have read in the blogging world. She also has to continually tell readers just how perfect her older daughter is and one has to wonder if that is a sign of her own insecurity. I wonder how all of that affects the younger, autistic daughter.

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  13. This is wonderful advice. I read once that if you make your calm, measured breathing audible, it can help an emotionally dysregulated person become more regulated. Also, I would add to your list: ask for cooperation from the child. If my son is given the power of agency -- and a little time -- in almost all situations it will end better than if I step in and do something to him or for him.

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  14. So True! The most challenging times for me to keep my own emotions in check is when we need to hurry or I am hungry or tired. All teachers working with spectrum kids should read this. Although it is also important for my extremely independent and strong willed neuro-typical child. It is actually even harder with her because my expectation of her being able to deal with things is higher.

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